Guidelines
A collection of guidelines that were released by Te Kotahi Research Institute.
Te Nohonga Kaitiaki - Guidelines for Genetic Research on Taonga Species (with background)
Hudson, A Thompson, P Wilcox, J Mika, C Battershill, M Stott, R Brooks, L Warbrick
Te Nohonga Kaitiaki refers to the role of kaitiaki and mana whenua in managing Māori interests in biological samples or genetic resources, and data relating to taonga species across the full spectrum of activities from sample collection to sample storage, from data curation to data sharing. On behalf of Te Nohonga Kaitiaki team, the following video is an outline of new guidelines for genomic research on taonga species that have emerged from a Genomics Aotearoa funded research project (presented by Maui).
Download Te Nohonga Kaitiaki
Watch the Kingitanga day video addressing Te Nohonga Kaitiaki Guidelines here.
Guideline Documents
Te Nohonga KaitiakiTe Nohonga Kaitiaki - Guidelines for Genomic Research on Taonga Species. M Hudson, A Thompson, P Wilcox, J Mika, C Battershill, M Stott, R Brooks, L Warbrick
Te Nohonga Kaitiaki refers to the role of kaitiaki and mana whenua in managing Māori interests in biological samples or genetic resources, and data relating to taonga species across the full spectrum of activities from sample collection to sample storage, from data curation to data sharing.
He Tangata Kei Tua: Guidelines for biobanking with Māori. M Hudson, A Beaton, M Milne, W Port, K Russell, B Smith, V Toki, L Uerata, P Wilcox. (2016)
This document outlines a framework for addressing Māori ethical issues within the context of biobanking. It draws on a foundation of mātauranga (Indigenous knowledge) and tikanga Māori (Māori protocols and practices) and will be useful for researchers, ethics committee members and those who engage in consultation or advice about biobanking with Māori in local, regional, national or international settings.
Te Mata IraTe Mata Ira: Guidelines for genomic research with Māori. M Hudson, A Beaton, M Milne, W Port, K Russell, B Smith, V Toki, L Uerata, P Wilcox. (October 2016)
This document outlines a framework for addressing Māori ethical issues within the context of genetic or genomic research. It draws on a foundation of mātauranga (Māori knowledge) and tikanga Māori (Māori protocols and practices) and will be useful for researchers, ethics committee members and those who engage in consultation or advice about genomic research with Māori in local, regional, national or international settings.
Te Ara TikaTe Ara Tika: Guidelines for Māori Research Ethics. A framework for researchers and ethics committee members. M Hudson, M Milne, P Reynolds, K Russell, B Smith. (2010)
Research contributes to the broader development objectives of society. Ethics has a specific role in guiding key behaviours, processes and methodologies used in research. International codes of ethics such as the Nuremburg Code (1947)2, the Helsinki Declaration (1964)3, the Belmont Report (1979)4 and, more recently, the UNESCO Universal Declaration on Bioethics and Human Rights (2005)5 shape the changing ethical standards and professional expectations for researchers.